Preparing for a life after death: A guide for parents of adult children with special needs
By Tamara E. Holmes, USA Today
Should You Transfer 529 College Savings to an ABLE Account?
By Robert B. Fleming, CELA ABLE accounts are relatively new savings options open to certain individuals with disabilities. As long as the funds are used “to improve the beneficiary’s health, independence of quality of life,” earnings aren’t taxed and eligibility for means-tested government programs won’t be affected. Now, families who previously established 529 college savings [...]
Don’t Let an Emergency Find You Unprepared
By Elizabeth L. Gray, Esq. While snowstorms, fires and other disasters can plunge entire communities into chaos, the challenges for those with disabilities are often even more acute. But with careful planning, individuals with special needs and their families can reduce the disruption. Get Informed Begin by contacting your local emergency management office to understand [...]
Paid Family and Medical Leave: The Disability Angle
By TJ Sutcliffe, Director, Income & Housing Policy, The Arc The need for paid family and medical leave is universal. Nearly all of us at some point will need time away from work to care for a family member’s or our own serious medical condition, or to welcome a new baby or new child into [...]
Citizenship Status and Special Needs
By Barbara Isenhour, Esq. Citizenship issues can significantly complicate the often bewildering process of qualifying for special needs benefits. Each federal program has its own stringent citizenship regulations. In addition, Medicaid and Supplemental Security Income (SSI), which are two of the most important programs for individuals with disabilities, have strict income requirements. If a non-citizen [...]
Government Benefits for Vets with PTSD
By Kelly A. Thompson, Esq. While post-traumatic stress disorder (PTSD) occurs throughout the U.S. population, military veterans are particularly at risk. Some studies estimate that up to 30 percent of the vets who have served in Iraq and Afghanistan have been diagnosed with PTSD. The disorder, which is caused by experiencing or witnessing a terrifying [...]
SNT Beneficiaries on the Move: First in a Series
This installment of The Voice was written by Special Needs Alliance member Kristen M. Lewis, Esq., who practices in Atlanta, Georgia at Smith, Gambrell & Russell, LLP. Kristen is also a Fellow of the American College of Trust and Estate Counsel. She is a frequent national speaker on Special Needs Planning, and serves on the Boards of numerous non-profits that support individuals with disabilities and their families. In her vast amounts of free time, she trains certified service dogs for Canine Assistants in Milton, Georgia.
Travelers with Special Needs Learn Ins and Outs of Airports
Travel can be especially stressful for individuals with disabilities…or it can open doors. During October, members of the Special Needs Alliance participated in programs in Chicago, Houston and Phoenix that were designed to introduce those with special needs to the airport experience. The Houston and Phoenix events were part of a nationwide program, Wings for [...]
Crowdfunding Should Be Handled with Care
By Stephen W. Dale, Esq. Crowdfunding, with websites such as GoFundMe, has increasingly been used to raise money on behalf of individuals with disabilities. In such cases, family, friends and members of the general public want to help pay for medical treatments, home renovations or the many other expenses faced by someone with special needs [...]
Changing Attitudes Towards Guardianship
By Scott Suzuki, Esq. Laws have to apply to everyone and this rigid standard can cause problems when dealing with the issue of "legal capacity," because capacity can’t be measured by a single standard. Someone may be perfectly capable of managing some daily tasks but may need assistance with others. For example, a person may [...]
Special Ed Needs Flexibility
By Krista S. Peyton, Esq., Guest Blogger Families find it difficult to navigate the special ed system. In my experience, there’s a tendency for school districts to push a one-size-fits-all model, with parents expected to accept what’s on offer. My son, Maxwell, was diagnosed with autism at the age of three, and through grade nine, [...]
Avoiding SSI Reductions When An Adult With Disabilities Lives With Family
By Neal A. Winston, CELA When individuals with disabilities live with family members, it can complicate their eligibility for Supplemental Security Income (SSI). Since SSI’s monthly cash payments are meant to pay for food and shelter, contributions from others for such living expenses may reduce SSI or could disqualify the beneficiary completely. With planning, that [...]
In Case You Missed This: Adopting A Child With Special Needs
In case you missed this: Adopting a Child with Special Needs By Mary L. Waltari, Esq. There's a growing need by children with disabilities for permanent, loving homes. If you think you're ready to adopt a child with special needs, it's important to the child, yourself and your family to research the financial, educational, medical and [...]
Where Can Service Animals Go?
By Richard A. Courtney, CELA In addition to performing helpful tasks, service dogs offer unconditional love and opportunities for social interaction. Service animals can change lives. My daughter, Melanie, who’s had service dogs for years, comments that beyond the many helpful tasks they perform and the unconditional love they provide, they open up opportunities for [...]
ABLE Accounts and SNTs: How to Choose?
The “ABLE” account is a relatively new planning tool that offers an individual with disabilities a tax-free savings option (similar to a 529 College Savings Plan) that does not interfere with the individual’s eligibility for means-tested government benefits, such as Supplemental Security Income (SSI) and Medicaid. Special needs trusts (SNTs) are well-established savings tools that [...]
Buying A Vehicle With Funds From A Pooled Special Needs Trust
By Joanne Marcus, MSW, Executive Director, Commonwealth Community Trust Buying a vehicle is a big financial decision involving research and patience. For individuals receiving Medicaid and SSI (Supplemental Security Income), the rules allow for ownership of one vehicle without jeopardizing benefit eligibility. When an individual has adequate funds in a pooled special needs trust (PSNT), using the [...]
Appealing Medicaid And SSI Decisions: Know Your Rights
By Ann N. Butenhof, CELA & Judith L. Bomster, Esq. Medicaid and SSI (Supplemental Security Income) are often essential to quality of life for individuals with disabilities. So it can be very stressful if benefits are denied, decreased or terminated. But federal law guarantees the right to appeal if you think a mistake has been [...]
Supreme Court Special Ed Decision Leaves Questions Unanswered
By Cora A. Alsante, Esq. A recent decision by the United States Supreme Court regarding Individualized Education Plans (IEPs) has been widely praised. The Individuals with Disabilities Education Act (IDEA) guarantees “free appropriate public education” to students with disabilities. The definition of “appropriate,” however, was at issue. The Supreme Court unanimously ruled that in order [...]
The Social Security Administration’s Special Needs Trusts Review Process
A Supplemental Security Income (SSI) recipient is eligible to receive a monthly cash benefit when the Social Security Administration (SSA) determines that, among other eligibility criteria, the recipient’s income and resources fall below certain limits. Generally, the SSA includes funds held in trust for the benefit of the recipient towards this resource limit; however, funds [...]
American Health Care Act Sparks Controversy
By Mary Alice Jackson, Esq. The American Health Care Act (ACHA), which has the objective of repealing and replacing major parts of the Affordable Care Act (ACA or Obamacare), passed the U.S. House of Representatives on May 4, 2017, by a razor thin margin─217 in favor, 213 against. Not many stakeholders like the House’s plan [...]