Advocacy

By Margaret Graham, Esq. March is Developmental Disabilities Awareness Month. Owing to parent advocacy and landmark legislation, communities have become significantly more responsive to the needs of people such as my daughter, Emily, who has cerebral palsy and autism. But challenges remain, and families continue to band together throughout the U.S. to help one another, [...]

By Leigh Ann Davis, M.S.S.W., M.P.A., Program Manager, Justice Initiatives The Arc, the nation's leading organization for people with intellectual and developmental disabilities (I/DD), has been awarded a two-year grant for $400,000 by the U.S. Department of Justice, Bureau of Justice Assistance (BJA) to develop a National Center on Criminal Justice and Disability, specifically focused [...]

The Special Needs Alliance and The Arc collaborate on issues of mutual interest. The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. The Bureau of Justice Statistics (BJS) recently released a report on Crime Against [...]

His art has been exhibited throughout the U.S., in Kiev, Galapagos, Curacao and the Cayman Islands. He can compose music on a computer, without the benefit of sound. He's won medals for ballroom dancing. Yet a skills evaluation, conducted, when Seth Chwast - who has profound autism - was 18, indicated that he could look [...]

By James A. Caffry, Esq., Waterbury, Vermont Government transparency - or the lack of it - is much in the news, and it's a concept to bear in mind as you advocate on behalf of a loved one with special needs. All of us have been frustrated at one time or another by bureaucracies that [...]

By Pamela Merkle, Executive Director, Association on Aging with Developmental Disabilities Thanks to medical advances, people with developmental disabilities are living longer and that longevity is bringing some very difficult and unexpected challenges. Their parents, who have often been their primary caregivers, are passing away and, unlike other seniors, they generally have no adult children [...]

By Robert B. Fleming, CELA Katie Beckett, who died recently at the age of 34, directly changed the lives of more than half a million children with disabilities. She inspired millions of children, their parents and the entire disability community. Due to encephalitis, she spent her earliest years in a hospital. In 1981, though doctors [...]

By Judith C. Saltzman Parents increasingly recognize the dangers of bullying. One nationwide survey finds that 30 percent of parents with kids ages 12-17 fear bullying more than kidnapping! Children with disabilities are even more at risk. Another study finds that those with autism are three times more likely than neurotypical children to become victims. [...]

Melanie Courtney, a legal assistant with Frascogna Courtney PLLC, has conducted training in self-advocacy for The Arc of Mississippi. The Special Needs Alliance recently interviewed her concerning this growing movement within the disability community. SNA: How would you define "self-advocacy"? Melanie: Self-advocacy is about empowering someone with a disability to have a voice, enabling them [...]

By Benjamin A. Rubin, Esq., LLM When a family member has special needs, siblings grow up fast. Parents sometimes speak of how life changed for them when they began caring for a child with disabilities, but for me, and for many siblings, the special needs household is our only frame of reference. Growing up, even [...]

By Scott Suzuki, Esq. I've been involved with Special Olympics for over a decade. Although anyone can benefit from sports— building self-confidence and a sense of belonging while improving overall health and fitness, strength and coordination—for individuals with disabilities, there are added dimensions. Changing a Life When I first started coaching, one of the newest [...]